This service is available for UK families only.

New diagnosis? You are not alone.  Although the Ks community has a thriving online support network sometimes you just need hear a friendly voice. Whether you are looking for support, or to be linked with a family nearby please complete the form below and someone from the team will contact you.

Our call back team is comprised of Kleefstra syndrome family members who have broad experiences and knowledge of the different elements of the syndrome, from diagnosis to specific medical conditions, signing to EHCPs, emotional wellbeing to family support. However, we are not medical professionals and cannot offer medical advice. We have good links across the community and if we can’t help directly, we may know someone who can! Do get in touch.

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